Sunday, June 3, 2012

Welcome to Chronic Migraine Time

Stephen King told a story called "My Pretty Pony Time."  Wikipedia gives us a summary of what this means - do you remember when you were little, how everything took s-o-o-o-o-o long, but "how when you grow up, it begins to move faster and faster, slipping away from you in great chunks if you don't hold tightly onto it. Time is a pretty pony, with a wicked heart." Time does seem to speed up as we get older.

The thing is, just as I am sure there is Pretty Pony Time, there is also Migraine Time.

Migraine Time is the time it takes to get things done vs. the things we want to get done and when they are actually accomplished.  In real time, you wake up, brush your teeth, maybe take a shower, and go about your day.  In Migraine Time, it feels like you are moving through Jell-o, making choices that require extra attention and extra time, all while playing a game of "how bad is the pain" followed by  that "uproarious" *cough* sequel, "Do I Have Enough Medication to LAST?" *sigh* Always a crowd pleaser, right?

Migraine Time happens in a fog. Migraine Time happens in THE Fog. A person in real time doesn't think twice. They're able to just DO things. We HAVE to think twice before we CAN do things. Sometimes we even have to think twice while we're doing. The whole time...

Migraines don't care about deadlines, in fact working under the added pressure is sure to bring on another attack, or, if we're already working with a deadline and a migraine both, to make sure that migraine is every bit as awful as it can possibly be.  We have to learn how to do things in other ways.  We can't just do things the way non-sufferers do.  Everything we do is more of an effort; it requires Special Handling.

By the time you read this blog, as of June 3rd, 2012,  we have launched a website:  Chronic Migraine Awareness  is now a live site for anyone with access to a computer can learn and feel at home.  With the help of many suffering friends, we have worked hard through our pain.  Most of us are unemployable because of the level of our disease, it's hard to make an employer happy when you're not even able to sit at a computer for more than 15 minutes at a time. Case in point - we have all tried to hard to have this site launched by the start of Migraine Awareness Month. This is a site about migraines, after all! But it's a site about Chronic Migraines...and with Chronic Migraines, we laugh...and remind ourselves that we're living with Migraine Time. We remind ourselves that The Migraine always has other plans... *sigh* With us, we can plan on the very real possibility that our (almost- to completely-constant) migraine will ratchet the pain up, throw in some auras, maybe a bit of vertigo - there's no END to the fun! *cough* It will keep us in bed, or in the bathroom being sick, or like me, in my "cave" - to everyone else it might be my laundry room, but to me, it's a refuge...the quietest, darkest room in the house. There we are, unable to do anything, existing on the sidelines, in Migraine Time again.  It will last for hours, maybe days, and that is just ONE migraine.  For us, though, "she" never comes alone!!!  Every month, for people with chronic migraines, "she" brings 15 or more of her friend along with the "party"...

So, the point is that, our new website is going to be done in Migraine Time.  It is a work in progress, we are doing our best while suffering and looking through one eye.  Welcome to Chronic Migraine Time!!.  Things get done when they get done, because that is the only way we can do anything.......BUT WE DO!!!!!!


  1. Migraine Time, that's good for all of us. ;-)

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  2. Migraine Time - I love it. It is SO true.

    I have boxes that need to be taken to the post office that have been sitting near my desk for over a week now. The post office is two blocks away.

    You have created a new term that WILL be used by many. It's my newest catch-phrase. Very eloquent blog!