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Showing posts with label parents. Show all posts
Showing posts with label parents. Show all posts

Sunday, June 10, 2012

Isolation



One of the hardest things to convey to people (aside from the daily agony) is how isolating this life is.  For an adult, it is bad enough, but most of us that are "chronic" started our suffering as children and teens.  If there is little understanding for us, as adults, there is none at all for children and teenagers.

We all want to belong.  As teens, it is especially hard. They're already struggling to find out who they are, learning to become independent, to make the transition between childhood and life as an adult. They're very influenced by their peers at this age - what others think or say about them can be lead to elation...or devastation...  Children can be very cruel in their comments (a trait that's all too often learned from their parents).  Now imagine that you are 16, and no one wants to bother with you because you are always sick with an illness no one can see...an illness that sometimes even your family doesn't understand. You can't participate because the added activity makes you want to throw up, makes your head pound, makes life impossible......as if it wasn't bad enough to have to give up your youth, you have to give up friendships, too... The teen years are difficult enough without adding in chronic migraines. Chronic migraines are debilitating enough without adding being a teen.

The world is a hard place.  That lesson shouldn't have to be learned at such a young age.  Please check out the blog of Caitlin, a high school teen, trying to deal with life while suffering from chronic migraine.



Tuesday, April 10, 2012

Parents with the wrong words

One of the things that is the most difficult to deal w/is the comments from our parents.......take these things into consideration the next time they say something insensitive....

We expect as parents that they should know the right thing to say and support us.......but if you take away the family connection and just see them as people you might not even like them.....in my case this true w/my father......he never understood my illness and he saw me as weak.....his comments were hurtful

What did society teach him/them about pain, mostly it is was suck it up, don't talk about it, deal w/it in private......their era wasn't about talking and sharing...it was about sweeping things under the carpet

What is he/she like as a person....again take away the fact they are related to you.....do you act more the parent??? do you sometimes wonder why they don't respond like adults??........some people don't mature, just because they are in full grown bodies and have survived to a ripe age, doesn't mean they have matured mentally.......adding in what society has taught them about how to deal w/issues and poof you have a parent that says mean, hurtful or unsupportive comments......learn to distance yourself and you will be able to cope w/them a little better.

If you happen to be a parent now, you have that perspective of knowing we don't have all the answers, neither did our parents....we now have medical advances and support groups....we don't sweep as many things under the carpet ....we are bringing attention to our pain.........things will be better for the next generation, or better yet a cure