Often we are surrounded by people that do not understand what it is like to live with chronic migraines, or any type of chronic pain. We forget what it is like to be in pain. If we didn't our instincts would kick in and we would go no where out of the fear of pain. Also there would never be any siblings, I wasn't given the luxury of an epidural with the delivery of my children and was given only Demerol.
What our family and friends need to know~We already live our lives with so much guilt. We aren't able to be the spouse, parent to our own children, good child to the aging parent, sibling when it applies or employer if we are still able to hold down a job. We push through the pain and pretend like it isn't there trying to fool ourselves and those around us that we are able to do things like we did with out the pain. The people around us don't always appreciate that. Instead of support we are greeted with negativity. Things are said like "you are sick again??...you are always sick". If there were anything else we could be doing other than suffering, we would gladly do it. When you start hearing you are shit day after day, sooner or later you will begin to think you stink.
What we, as sufferers need to remember~ You are sick, you can't possibly produce and be as effective as someone that is healthy so don't try to keep up. You have to go at your own pace and learn to say no. This is often the hardest thing to do. We don't want to feel like we are being difficult and then take on tasks that we will most definitely pay for it later. Be your own best friend!!! Treat yourself the way you would treat your best friend. Don't neglect yourself. Making yourself a priority. Taking care of yourself and seeing that your needs are met will make you a better person all around. Pushing yourself when you are chronic will present itself somehow physically. This does no one any good. If you are one of those that has control issues, you need to learn to delegate. This requires as much control as doing it yourself. If you have others in your home that are capable then they should be doing their part too.